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Tending to Endings (thirty-four)
In 2015, my friend Roya called to ask if I’d speak at our friend Pat’s Celebration of Life. Roya is a minister and was officiating the service, and Pat had been a close friend and spiritual mentor of mine for fifteen years. Pat was 82, but her death came only one week after a diagnosis of pancreatic cancer. She was beloved in a wide circle of friends and our community was reeling from the unexpected loss of her. I felt both the honor and the weight of being asked to share at her service.
I told Roya, of course I would speak, and then I did what I do: I opened a file on my computer and began typing. I wrote pages and then took a bunch out and moved paragraphs around until I had a beginning, a middle, and an end. I added more sensory detail. I edited each sentence. I read it aloud and fiddled with wording and then read it aloud again. It made me tear up which seemed a good sign. Then I sent it to Roya to see what she thought.
Roya was kind. She said something like, “This is beautiful essay about Pat that you might publish somewhere, but I’m not sure it is what people will need from you at the service.” She added, “It might good to bring a few notes up with you but to speak more from the heart. Friends and family will be hurting, and they will want to connect.”
I wasn’t thinking of that. I was thinking of how I was going to get through this talk and how I could possibly make it good enough to honor Pat. Fine goals, but I was missing one that Roya saw because she had been through this many times before.
I’ve been thinking of things I’ve learned from people who have dedicated their professional lives to end-of-life care. So often when I listen to their experiences, I hear about an angle missing from my own view. Often it is a perspective that both humbles and helps me.
Since beginning this blog, I’ve found opportunities to talk with people who spend many hours with those at the end-of-life and their families. In this week’s post I’m sharing a few insights they’ve shared with me that have helped broaden my perspective.
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On Helping Families
Humans are made with a capacity to tolerate grief. And, in fact, until we know that space where love was, that is now empty, we cannot know it will one day be a source of something powerful and important in our life. So, I think when I approach dying people, and their families, it is from a place of nonverbal confidence that they can do this, that in fact there is the possibility at end-of-life of something beautiful to find in the experience. –Norm, Hospice Chaplain
Here is something I learned a long time ago. There are many things worse than death, the actual death is not the hard part. The fear, the pain, and suffering can be very hard. My 28-year-old niece has a recurrent cancer. It is not an immediate death notice, more likely a notice of a serious marathon of difficult surgery and chemo. My sister is grieving. For my part, right now, I am a sister rather than a cancer nurse, trying to be a listener, not a know-it-all. It seems that my encouragement of my sister as a strong advocate for her daughter brings Pam the most comfort. We want to know that what we do matters and that comes in the middle of so much helplessness. The intangible actions such as listening, reassuring and acknowledging feel so helpful. — Jane, former Oncology Nurse
Families are all so different. I try not to go into the experience with any assumptions about what each person may or may not be feeling. I’m there to help support them with caregiving and coping with the end-of-life, and to help them tap into their own strengths and get through it together.–Kathe, Hospice Social Worker
On Care in the Time of Covid
Although we haven’t been able to do volunteer visits due to COVID, we look for other ways to help. When the pandemic started, a number of volunteers immediately went to work on a mask project. Some volunteers have been able to do visits over the phone or FaceTime. And our staff has been reaching out to our colleagues who work within the longterm care facilities, sending them cards and pastries and letting them know we are thinking of them. Their jobs are so hard right now. We try to support them in any way we can. –Desiree, Hospice Volunteer Coordinator
One of the things that has been happening lately is that families who never expected to care for loved ones at home are now doing so because of COVID. So some of our hospice work has been helping families succeed in doing this care. And for the same reason, we now also have end-of-life patients who are isolated in hospitals and facilities due to COVID precautions. So we are discovering new ways to help them connect to their loved ones—like window phone calls and FaceTime and tele-health and more in nursing home care. –Norm, Hospice Chaplain
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On Listening to the Dying
My friend Dia, who worked in the hospice field for years, has been such a gift to me as I’ve navigated this topic. Last winter, during a walk along the Boise River, she shared some of her experiences and I still hear her voice whenever I start thinking of what my own role might be.
Laura, when I started hospice work, I truly thought I was gonna be God’s little gift to the dying. I’d go in and strew all my caring and pearls of wisdom over them and then they’d have a good death. Boy, did I have it backwards! I just laugh at myself now because they were the ones who had all of the wisdom. They were the ones facing death, and they were my teachers. I still look at that hospice work as being the place where I learned more and gained more than anything else I’ve done.
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Which brings me right back to humility. Sometimes for me this means listening to those who are already gone.
After my conversation with Roya, I went for a walk on the trails feeling lost and not at all up to speaking the next day. It wasn’t perfectionism that had me this time. I wanted to be honest when I spoke, and the truth was I felt sad and confused and a little angry at Pat for dying so fast. I was mad at myself, too, for not calling her more often in the months before, when I knew she wasn’t feeling well. I was utterly sad I didn’t get to see her one more time. These selfish feelings seemed unworthy of Pat’s Celebration speaker.
Somewhere during my hike, I brought my frustration directly to Pat, which felt childish, but I didn’t care. “You are the person I would talk to when I had a problem like this, Pat! If there is something you think I should say, will you please help? Because I am not feeling up to any of it.”
It was a relief just to say it aloud and I stood on the ridge and took a deep breath before heading home. Then I turned around and was completely surprised by a rainbow that arched from one golden hill to the next. It was February in Boise (not Rainbow Beach in Kaanapali), and the colors stretched across the whole sky.
“Well, okay, then,” I said to Pat. “Thank you.”
And I had at least one thing I could say to my beloved, grieving community, all of us aching and confused by the empty space where Pat was: We can be here for each other. And guess what, we can still talk to Pat, too. She told me so.
Tending to Endings is a weekly column that comes out each Friday. If you would like to subscribe, please leave your email below. You can also reach me at laura@laurastavoe.com.