Looking, Learning

Tending to Endings (twenty-seven)

Thank you for the thoughtful ideas and questions you sent in during these last couple weeks! In response to the survey, readers have asked for more about caregiving, grief, and living with Alzheimer’s. Readers said they would like to read about the importance of friendships and other support systems, and more about how various cultures approach death.

From your emails, I’ve gathered some great questions to explore:

Why do people often feel guilty when someone dies, like they could have prevented or changed someone’s death?

What cultural forces have made death a taboo topic and what resources are there to help turn that around?

How do we make friends with death rather than fearing it?

How can we let go of preconceived ideas about a loved one’s death, so we can be present for how it actually unfolds?

These and the other wise questions energize and also humble me. How will I ever learn enough to write the post on making friends with death?! What if I get it wrong? And then I remember this is about being a learner not an expert. (I’ll never title a post, Five ways to die with dignity!) But I will explore and share experiences, insights, and resources I find along the way.

It sometimes seems a low bar for a yearlong blog, paying attention to endings. But when I think of how rare it is to comfortably discuss death in our culture, even among close friends or family, it suddenly seems a year isn’t long enough.

It is an expedition that inspires me, not only because of the big questions contained within the mystery of death. But also because there are small, everyday gifts there. I believe there is life in every nook and cranny of life, including the last moments of breath. And it is life that I do not want to miss.

I hope you will continue to send your ideas and questions my way. Please also consider sending me resources that you find if you think they would be helpful for others.

Workshops

I only had a few takers on the various online workshops I suggested. I think maybe the timing isn’t right for that. We have a plethora of online courses and events to choose from these days! With summer in full swing, many of us are longing for less screen time and more outdoor time.

I also know that not everyone is comfortable with online videoconferencing. Just for your information, the platform I use for meetings is Zoom which is easy to learn, and I have privacy settings selected so that participant information is not recorded or saved. I will check back in later in the year to see if there is more interest.

More Voices

In the meantime, I do want to include more voices in the blog. I’ll continue to share books and online resources, and I also plan to do more phone interviews with people who work in the field of hospice care or grief counseling or ministry. Since Covid-19 is currently on the upswing in Boise, my more experiential research is likely to remain on hold for awhile.

I also plan to include more stories from people who do not work in the field. The thing I hear over and over from friends who have done hospice work is that every death is unique. This again reminds me of birth stories and how paying attention to each others stories not only give us more information, but also offers ways to connect during one of the most profound experiences of life.

One way I hope to gather some of these diverse experiences will be to pose a question and a call for stories every now and again, starting this week.

Call for Stories

Questions #1: What was your first experience learning about death?

For me it was my Aunt Gen when I was four or five years old. I loved my aunt who was a large woman with white hair and glasses with rhinestones that glistened. She came to my nursery school concert one afternoon where I played the the triangle and it made me feel important that she was there. I eventually chose my first pair of glasses after hers, choosing a light blue pair with sparkly stones in the corner though mom tried to talk me into tortoise shell frames.

One evening I heard my parents talking about something serious in the kitchen. When I entered the room, they told me that Aunt Gen was very sick in the hospital. She had cancer. I asked to see her and my mom told me kids weren’t allowed but that maybe they could make a special exception. Maybe I could visit her from the hallway. This part of my memory doesn’t make much sense to me, and I may be remembering it wrong. I was very young after all. But soon after, I had a dream that I got to wave to my aunt Gen who was standing at the end of a long corridor.

In real life, I did not get to see Aunt Gen again. She died soon after that kitchen conversation, and I felt utterly betrayed. My response was an epic tantrum full of anger and endless tears that became part of family lore. It was a story my mom would use to describe my personality, Laura feels things deeply. It was recalled each time I would have to leave a friend I’d made camping and would sob all the way home.

I would love to hear your stories about your first remembered experience with death. Send them however is easiest for you: email laura@laurastavoe.com; post in the blog comments section or even to the blog link on my Facebook page; send a voice file from your phone if you don’t want to write it down. Seriously, whatever is easiest! Feel free to include a photo if you have one. 

Your memory can be a few sentences or a full page. I am just looking for a variety of experiences to reflect on and possible share in a future column. I will respond to you individually, and I will ask before using your words in a post.

This Independence Day, I wish for you a sense of connection and unity and purpose as we reflect on and celebrate the ideals of our country. Thank you for being here! Have a wonderful holiday weekend. 

This holiday, I wish for you a sense of connection and unity and purpose as we reflect on and celebrate the ideals of our country. Thank you for being here! Have a wonderful holiday weekend.

Laura

If you would like to receive Tending to Endings each Friday, please subscribe here. Thank you!

Listening to Land

Tending to Endings (twenty-six)

I am from the forsythia bush,

The Dutch elm

Whose long gone limbs I remember

As if they were my own…

George Ella Lyon, Where I’m From

A few weeks ago in a story circle I was asked to share a story of my ancestors and I was embarrassed that I felt stumped. I feel very connected to the family stories of relatives I know. But going back before my grandparents’ generation, what I have are anecdotes that may be true or may be lore, a few names, and at least six mostly European countries to draw upon. The stories I have do not quite feel like my own, and I have not yet made a point of learning more.

I have been listening to Braiding Sweetgrass: Indigenous Wisdom, Scientific Knowledge and the Teachings of Plants, by Robin Wall Kimmerer which on one hand does not seem to be a book about endings or end-of-life. But on the other hand seems to offer a view into the benefits of knowing the stories of those (human and nonhuman) who came before us. In some ways it is a reminder that lives never really end, they just get carried forward knowingly or unknowingly in the land and the people and the ways of what comes next.

Kimmerer gently and beautifully makes a case for forming a reciprocal relationship with land. She speaks from the perspective of scientist and storyteller and daughter of mother earth. She reminds me that place, too, offers us ancestors. She writes, “This is really why I taught my daughters to garden–so they would have a mother to love them long after I am gone.”

I don’t garden yet, though I hold out hope for myself. I know gardening was a meditative and community practice for my own mom. Every year she invited the fourth and fifth grade classes at a nearby school to help plant and harvest food in her backyard. My mom responded to birds and flowers and squirrels with the same way she responded to toddlers, with respect and love and joy.

Kimmerer writes,

Knowing that you love the earth changes you, activates you to defend and protect and celebrate. But when you feel that the earth loves you in return, that feeling transforms the relationship from a one-way street into a sacred bond.

And I think, yes, this is what I saw in my mother.

Even without a garden, I relate to the way Kimmerer speaks of the relational aspects of place and how loving places can connect us to the stories of those who came before us.

When John and I bought the house we currently live in it had only been owned by the couple who built it. Their names, Beryl and Otto, were carved into a wood plaque on the front porch. Their grandkids’ heights are still penciled on the wall of the garage next to sketches of sharks and dolphins. Both Otto and Beryl lived in the house up until they died.

I feel connected to this couple I only know through handwriting on notes next to utilities, their charming choice of light fixtures, the giant trees they planted that shade the yard from afternoon sun. The house they built in 1981 is sturdy and sound. They planted apple and cherry and walnut trees that blossom in spring and one apricot that shows off during a bumper year, producing more fruit than our family, friends, neighbors or visiting deer can possible consume. I think of Beryl and Otto often. I feel a kinship in our shared caring for this place.

When I would take writing workshops into K-12 classrooms through a non-profit arts program, I’d often share a poem by George Ella Lyon, Where I’m From as one of my no-fail writing prompts. It always brought forth student poems brimming with imagery that would make a parent or a teacher’s heart swell. This was true whether the writers were third graders from bright leafy neighborhoods or teenagers writing from the juvenile detention center or the kids living in migrant camps near the orchards along the Snake River corridor.

Kids would name the tree outside their bedroom, the tamales their auntie made, the butte shaped like a lizard sleeping against the horizon near home. They would name the the things their father always said, their own Imogenes and Alafairs, their grandparents’ scars. They were connecting to ancestors—human and nonhuman—with words.

Beyond my literal home, too, I have found this sense of belonging particularly in places where story is still present in the curve of the land. I feel it in the cave walls of wild river canyons, or walking through forgotten cemeteries, or coming upon an ancient dwelling in the cliffs of Southern Utah. It is not a blood connection that I have to the people or animals or stones. But maybe what Kimmerer names as kinship with the people who worked and walked and died before me. It is not an intellectual knowing; the earth hums.

North Fork of the John Day River circa 2008

Kimmerer’s philosophy on reciprocity and gratitude has brought to mind the custom that is gaining momentum of opening events by first naming the indigenous land on which they are held. It has made me think, maybe it goes beyond being a gesture of correction and respect. Maybe it is also an offering. A way for many of us to begin finding an entry point to a fuller story of where we are from.

I have not always leaned into the hard stories of the places I’ve lived. America has so much to grieve, to atone for, to heal. Sometimes I think, it is too much. Like a pandemic, like Alzheimer’s, like death. But that is my ego talking. That is fear and denial. Besides, Kimmerer’s writing reminds me, the stories of our past shape us with or without our knowledge or consent.

I have learned this from my own personal history over and over again, why would it not be true of our collective story as well? I have also learned that when I finally do open, I am never sorry.

Wendell Berry’s famous lines from How to Be a Poet have always rung true for me:

There are no unsacred places;

There are only sacred places

and desecrated places.

Now I think, though, that maybe all places are both. Humans inhabit this earth sometimes by force and sometimes by carelessness and sometimes by heart. I want more heart.

More Resources

I’ve begun talking about this time as my accidental sabbatical as I’ve been spending a lot reading! The books below are ones that have given me a fuller view of where I am from. Some of them I have mentioned in earlier posts as well.

Braiding Sweetgrass: Indigenous Wisdom, Scientific Knowledge, and the Teaching of Plants, Robin Wall Kimmerer

The Warmth of Other Suns: The Epic Story of America’s Great Migration, Isabel Wilkerson

Stamped from the Beginning: A Definitive Guide to Racist Ideas in America, Ibram X. Kendri.

An American Sunrise: Poems, Joy Harjo

The Fire Next Time, James Baldwin

A Little Bit of Wisdom: Conversations with a Nez Perce Elder, by Horace Axtell with Margo Aragon

Next week I will share what I learned from the surveys. Thank you so very much for the thought and heart you put into those! I’m very excited. Feel free to continue to send feedback to laura@laurastavoe.com in the meantime, or anytime.

If you would like to receive Tending to Ending each Friday, please leave your name and email below. Thank you!

Your Thoughts

Tending to Endings (twenty-five)

First, thank you for being here! I am grateful for the small, growing readership and the feedback I’ve received from emails and comments that have let me know that people are finding this project helpful.

My plan for Tending to Endings was to write once a week for a year on topics pertaining to end-of-life matters. Since next week marks the halfway point of 2020, it seems wise to pause to reflect and ask for some input.

There are currently 114 subscribers to Tending to Endings and about another 50 people access it online each week. Given the demands on everyone’s attention these days, I am thrilled people keep returning. Early on I figured as I had a handful of readers, I would keep posting. So, thank you! It is so much less lonely with all of you here!

Not everything has gone as planned. In my first column, I described this as a gentle expedition and I intended on exploring resources in my community like I did when I attended the Death Café early on in the series. Much of the fieldwork has been on hold due to Covid-19 restrictions, and I have often relied instead on reflections from my own experiences alongside links to print and online resources.

I enjoy personal narrative as a form, but of course my own experience is limited. My hope is that I will be able to get out in the field again soon so that I can include more perspectives and voices. If you have ideas you would particularly like to learn about, I’d love to know. I’d also be interested to know which resources you have found helpful.

The platform for commenting is a little clunkier than I hoped. I am interested in hearing more about the comments feature and whether you would like a more active comments section. I am also exploring some ideas for more real-time interaction opportunities through online workshops.  

In case you are interested in perusing past installments, I recently added tags to each post so you can more easily find posts on the topics of interest. I will temporarily tag this post with all themes so that you can easily find essays on topics you might have missed. Look for the hashtag (#) followed by this list below at the bottom of the post: Alzheimers, Caregiving, Community, End-of-life Planning, Relationship Work, Spirituality, Story, Talking about Death. Each link will bring you to a collection of posts related to that topic.

Whether you are a new reader or have been following from the beginning, I would love to know your thoughts as I begin planning for posts for the second half of 2020.

Please cut and paste the questions below into an email laura@laurastavoe.com

Write as much or as little as you want to each question below. I would love to have these back by Monday, June 22 but will appreciate them whenever they get here. I will not share your info with anyone.


Please tell me something about yourself and why you read Tending to Endings.

How would you complete the following statements?

  • I would like to read more posts on the topic of…
  • Some things that would improve Tending to Endings or make it more relevant for me would include…
  • One thing I hope will not change about Tending to Endings…

Do you have any thoughts on any of the following?

  • Comments Feature
  • Links to Resources
  • Length of posts
  • Photos
  • Format and Organization

Would you participate in any of the following options assuming they are offered at a time that worked for you at no cost using an easy-to-learn online conferencing tool?

Please rate your interest with 5 = I can’t wait for this to start!, 3= I might be interested, and 1 = This is not for me. (Feel free to include other thoughts, comments, ideas.)

  • An online weekly story circle where participants share their own stories on end-of-life topics. Four meetings. 1.5 hours each. Limit 12 participants.
  • An online writing workshop with the focus of writing about endings. Every other week. Four meetings. 2 hours each. Limit 12 participants.
  • A once-a-month online book club on books related to end-of-life matters. One 2-hour meeting per month. Limit 20 participants.

Anything else you want me to know?

Thank you so much for reading Tending to Endings and being willing to share your thoughts. Have a beautiful weekend.

In gratitude,

Laura

photo of Laura

Please leave your name and email below to receive Tending to Endings each Friday. Tending to Endings is ad free and cost free and I will not share your info. Its aim is to build community and conversation around end-of-life matters.

Mending

Tending to Endings (twenty-four)

In November of 2016 I visited my Mom and Dad in Maui. One evening I asked them if I could read a letter:

In recent years, I’ve become more aware of how some of my actions in the past were hurtful. You have always been so generous and loving to me that it didn’t even register how unthinking I was sometimes, even well into my adulthood.

When I pull that letter up from my computer now, I have a number of responses to the timing. One is that I can’t believe it took me so long to see how some of my actions affected my parents. The things I wrote about in the letter were more than fifteen years old in 2016. They weren’t secrets to them or me, I just had not discussed them directly.

Secondly, I am struck by the timing because any further hesitation and I would’ve been too late. My mom’s cognitive abilities were declining, something that happened slowly at first, but accelerated after her second cancer surgery. Had I waited even one more year, my mom would not have been able to receive the information without it causing confusion and probably distress.

Life prompted me to do this work. My summer had been marked by loss. My friends Susan and Ellen had each died unexpectedly in July, Susan of a brain aneurysm and Ellen a two days later of an infection. These deaths of friends who were near my age and who I was very close to brought my own mortality into focus. They also gave me insight into particulars of death related to relationships.

For example, Susan’s husband and daughter were incredibly welcoming to friends and colleagues and extended family when Susan was in a hospital on life support. The time there was very difficult because we were losing Susan, but I also witnessed an ease in the relationships among those who came to help help and to express their love and to say goodbye. When Susan was removed from life support, she was surrounded by friends, colleagues, step-children, her daughter and son-in-law, her husband, and her ex-husband, Katie’s father.

Susan and I had been friends for many years, and I knew what I was witnessing was a result of her commitment to the work of nurturing and mending relationships. Even the medical staff commented on how rare it was to have so many caring people lending support.

Susan had lost her own mother to cancer when she was in her twenties. And in that hospital room in Portland, I knew that the single most important thing to Susan that day and going forward would be that Katie had her dad by her side and a circle of strong support around her.

Katie and Susan, 2015

This experience prompted me to take stock in a more deliberate way. What I needed to tell my parents was that the distance I had put between us during hard times in my life was never because of them but because of me. For much of my young adult life, I made a habit of pulling up stakes and starting something new whenever things got too painful. I would leave jobs, relationships, whole states behind and then throw all of my attention into something new.

I would talk to my parents about these changes after everything was back together again, and I felt on stable ground. Or, on those occasions when things were so bad that I needed their help, something they always graciously and lovingly provided. This pattern continued until 1999 when I was going through a second divorce at the age of 34.

I had many relationships to mend after that and a lot of work to do. Certainly in the fifteen years between that time and my amends, my relationship with my parents had already grown much closer due to those changes. 

Still, I had never directly acknowledged how the distance I created hurt them. My mom had made a practice of never guilting us about anything, and it was fairly easy for me to remain in my self-centered haze. But now I had adult children of my own. I was freshly aware of how difficult that time of distance must’ve been for my parents, when they knew their daughter was struggling.

I am deeply grateful for the nudge that prompted me to write and read that letter. I was able to tell my parents that I saw how much they loved me all along and that they had always made it easy for me to come home. I told them that their loving support made all the difference in my life when I finally was ready to grow. I told them thank you

My mom told me she knew all that and that she loved me and that I was a beautiful writer, which is exactly what my mom would say. My dad folded the letter and thanked me and told me he was going to keep it in the nightstand to read again. I could tell that it mattered to him that my mom got to hear my words.

Often my amends lately have been recognizing and receiving love, sometimes belatedly. Many people besides my parents have been good to me throughout my life, and I at times have been too self-centered to notice the depth of their care. I think of my friend Louise who I only recently reconnected with about two years ago after having lost touch in 1991 when I moved from San Diego to Idaho.

When I was going through my first divorce, I was in a great deal of pain and fear. I was also in graduate school and pretty much avoiding feelings by staying very busy taking 22 units and student teaching and commuting on the weekends between San Diego and Los Angeles.

Louise knew I was struggling and that I was more isolated than usual, and so she mailed me a letter every week that I received at my rented room in Los Angeles. I only remembered this now because while going through boxes during quarantine time a few weeks ago, I found piles of handwritten cards and letters and artwork she had mailed me. One for every single week of the year I was away. I am someone who resents having to find a stamp and envelope when bill arrives that I can’t pay online, so I was impressed by her commitment!

I’m sure I appreciated Louise’s notes at the time, but I hadn’t even remembered this act of love. I was so glad I found them and that we are in touch again so that I can say thank you for reminding me during that time that I wasn’t alone.

This work of righting wrongs of course takes many forms in spiritual and religious traditions as well as programs for addiction recovery, counseling practices, and justice groups. Sometimes it is called reckoning or reparations or amends, all of which imply an admission of wrongdoing, an attempt to repair, and a commitment to doing better going forward.

Going forward, I made that commitment to remain open and available to my parents. I became more actively engaged in their lives, and I showed up when I could be helpful. Which of course ended up being the greatest gift of all for me. I was able to be present during the years when my parents needed me most and to be by my mom’s side when she died.

Frank Ostaseski writes in The Five Invitations, “as people come closer to death, I have found that only two questions really matter to them: Am I loved? and Did I love well?

The second question in particular was one my mom asked in different ways during the last weeks of her life. Had she given enough? Had she shown enough love? My dad and my sisters and I took turns reminding her of all of her grandchildren she nurtured, the children she taught, the daughters she’d raised. We read to her all of the stories her friends had sent about her teaching and activism and book groups and gardening. My mom was a sharer of ideas and enthusiasm and love. What a gift to be able to crawl in bed beside my mom during those last days and whisper to her about all of the ways she loved us.

More Resources

Most books I’ve read recently about death and dying spend at least some time on addressing the topic of unfinished relationship work. One that went into more depth and approached the work from a variety of interesting contexts is The American Book of Living and Dying: Lessons in Healing Spiritual Pain, by Richard F. Groves and Henriette Anne Klauser.

I also want to mention that one of the reasons this topic came to mind this week is because like many, I have been reading antiracism scholars including Ibram X. Kendi and Robin DiAngelo both of whom speak powerfully to different facets of antiracism work. One thing DiAngelo’s White Fragility offers related to amends are examples of ways to acknowledge and take responsibility for times we fall short in a way that does not put more pressure on the recipient or do more harm.

If you would like to subscribe to Tending to Endings each Friday, please leave your name and email below. Thank you!

Speaking Names

Tending to Endings (twenty-three)

Much of this week for me has been about listening and weeping and witnessing and reading and very little cohesive writing. But I do want to share a few personal reflections that seem relevant during this collective loss, and also, a few resources in case you find them helpful.

Boise held a vigil on Tuesday evening to mourn the killing of George Floyd and a long list of other Black lives taken by state sponsored violence. Five thousand attended at the steps of the Capitol. I watched over livestream and wished I was there in person. The Black leaders who organized the vigil helped us channel anger and despair into story and silence and song. And then we said the names, thirty minutes of names, each one followed by fifteen seconds of silence. Some were familiar to me: Tamir Rice, Eric Gardner, Trayvon Martin, Michael Brown, Emmett Till, Breonna Taylor, George Floyd. Far too many were not.

I’ve thought a lot recently about how difficult it is to speak the name of those who have died even when the death is not untimely or brutal or tragic. Bringing up the name of a loved one who is gone sometimes brings uncomfortable things into the conversation–sadness, the need to console, new questions, the reminder that we are mortal.

When the death is one that is marred by tragedy or wrongdoing or violence, when I am uncertain of my own responsibility, when innocent people get hurt, it is even harder.

At times in my own life, I have felt the pull to avoid reckoning and grief. When my kids were young, for instance, and I was going through a divorce, it was tempting to avoid stories about their past that included their father. Divorce with young children was excruciating and I felt a great deal of guilt and anger and uncertainty and sadness. I didn’t want more hurt to arise for them or me. It was tempting to try to start from where we were in our new parallel co-parenting lives.

But one afternoon while my sons and I snuggled on the couch for story time, one of them asked me to tell the story of when they were born. I hesitated, thinking, no way can I tell that one. And then I took a deep breath and dove in to the story they had heard many times before. The telling was healing for me and important for my sons. It was their origin story and evidence that they come from great love.

That moment of hesitation gave me awareness, and it was the beginning of me learning to not step around any of our stories. It took practice and a willingness to be very uncomfortable and, for me, lots of therapy. I needed to talk through all the painful stories with wise adults so that I could be present for my sons as they worked through their own hard journey. That work brought me to a point where I could talk about their daddy as they did, with ease and enthusiasm and kindness.

This has come to mind lately, not because it compares in scope or scale (it doesn’t), but because guides me as I grapple with the question of my own role in the painful story of racism our country. That moment of hesitation still informs me.

For instance, saying Black lives matter shouldn’t be any more complicated for me than saying the lives of the elderly matter. Both of those statements are true and needed and both have implications for policy and politics. I believe both deeply. But only one feels like it takes a bit of bravery for me to say. I suspect this is because I have not fully integrated our collective past with our current story.

I believe much of my own anti-racism work begins with making space for that larger story. In my experience, stories are essential for healing, not because they provide closure, but because they offer a path to connection and belonging. It’s human to want to skip over the hard part, but I don’t think we get anywhere good without it.

More Resources

These are just some of my favorites that speak to the healing power of story, particularly stories that have been excluded or left behind

In this ten minute episode of Poetry Unbound, Ali Cobby Eckermann’s A Poem for Keeping Memory Alive. Pádraig Ó Tuama introduces the poem:

Ali Cobby Eckermann’s poem calls readers to pay attention to the fact that remembering is a moral act; it is a courageous act, and to remember the ways in which our people may have participated in massacre mobs and to remember that mourning is an ongoing muscle that we need to recognize and that we need to practice;

Isabel Wilkerson is a masterful storyteller and historian and The Warmth of Other Suns: the Epic Story of America’s Great Migration is one of the best books I’ve read in recent years on the topic of American history.

Our US Poet Laureate, Joy Harjo writes often of indigenous stories that have been silenced in her newest book, An American Sunrise. The poem, “Washing My Mother’s Body,” is a particularly visceral account of reconnecting with story through memory and ritual:

I never got to wash my mother’s body when she died./ I return to take care of her in memory./ That’s how I make peace when things are left undone./ I go back and open the door./ I step in to make my ritual. To do what should have been done,…

I used to incorporate Chimamanda Ngozi Adichie’s TED Talk: The Danger of a Single Story into my writing classes, and it has been coming to mind a lot lately:

Power is the ability not just to tell the story of another person, but to make it the definitive story of that person. The Palestinian poet Mourid Barghouti writes that if you want to dispossess a people, the simplest way to do it is to tell their story and to start with, “secondly.” Start the story with the arrows of the Native Americans, and not with the arrival of the British, and you have an entirely different story. Start the story with the failure of the African state, and not with the colonial creation of the African state, and you have an entirely different story.

The Facebook Page of the Idaho Coalition Against Sexual and Domestic Violence includes links to the video of the Boise vigil held on Tuesday. I have also been participating in their Collective Thriving Story Circles that they are facilitating this year which may be of particular interest to those living in the Treasure Valley area.

If you would like to receive Tending to Endings each Friday please subscribe by leaving your name and info below.

Thank you and Love.