Slow Food

Tending to Endings (thirty-seven)

My teachers come in many forms—friends, apricot trees, students, neighbors, rivers, my own fears lifting. Some of the teachers I feel closest to are those I’ve never met except through their books. These authors have helped me see differently or more wholly, and sometimes their wisdom becomes foundational to my own thinking and writing.

As I’ve gotten older, I’m less concerned with being original in my writing and more concerned with being honest and precise. Each day brings new stories, new contexts. But the wisdom always belongs to the collective.

For instance, it occurred to me recently that that the title—Tending to Endings—is probably rooted in a line I have carried with me since 2016 from Mary Oliver’s essay “Upstream”: Attention is the beginning of devotion. The line reminds me when I am overwhelmed by all I don’t know and don’t understand about something important—like grief or love—to begin by turning towards rather than away. To make peace with death, then, I might begin by paying it some attention.

Lately I have had more space in my life for not only the compulsive reading I always do—the skimming of articles to get the gist of things—but also for sinking into books composed thoughtfully, carefully, over time. Certain books require attention of mind and heart. For all the strangeness of the past year and a half of my life, I have been grateful it has allowed space for that kind of reading. These books feel like conversation more than consumption. They are books I can talk with on a long hike afterwards:  agreeing, questioning, turning things over in the light, welling up with recognition.

Below are just a few that have recently influenced my own thinking, probably my writing, and hopefully my living, too. These works contain too many nooks and crannies to do justice to in a summary or a critique. And so instead I am including a few quotes from each that have stayed with me long after I set the book down.

Mary Oliver, Upstream: Selected Essays.

Oliver converses with Poe, Emerson, Whitman, and Wordsworth in this collection of essays. And also, owls, turtles, her house, and the long dark nights of winter. Here are three quotes from her essay, “Winter Hours”:

We speak of the light of reason. I would speak here of the darkness of the world, and the light of _____. But I don’t know what to call it. Maybe hope. Maybe faith, but not a shaped faith—only, say, a gesture, or a continuum of gestures. But probably it is closer to hope, that is more active, and far messier than faith must be. Faith as I imagine it is tensile, and cool, and has no need of words. Hope, I know is a fighter and a screamer. (147)

Through these woods I have walked thousands of times. For many years I felt more at home here than anywhere else, including our own house. Stepping out into the world, into the grass, on the path, was always a kind of relief. I was not escaping anything. I was returning to the arena of delight…Eventually I began to appreciate—I don’t say this lightly—that the great black oaks knew me. (151)

I would say that there exist a thousand unbreakable links between each of us and everything else, and that our dignity and our chances are one. The farthest star and the mud at our feet are a family; and there is no decency or sense in honoring one thing, or a few things, and then closing the list. The pine tree, the leopard, the Platte River, and ourselves—we are at risk together, or we are on our way to a sustainable world together. We are each other’s destiny. (154)

Linda Hogan, Dwellings: A Spiritual History of the Living World

Linda Hogan is fairly new to me. I’m currently reading her poems (Dark, Sweet.), fiction (People of the Whale), and this collection of essays, Dwellings. Through all her writing she weaves together science and spirit and story. Hogan does not hesitate to bring the hardest things about living in this world into the discussion, and she does so in a way that is specific and gorgeous and that offers guidance.

From her essay “A Different Yield”:

When I was a girl, I listened to the sounds of the corn plants. A breeze would begin in a remote corner of the field and move slowly toward the closest edge, whispering. (47)

When I first heard of Barbara McClintock, it confirmed what I thought to be true about the language of corn. McClintock is a biologist who received a Nobel Prize for her work on gene transposition in corn plants. Her method was to listen to what corn had to say, to translate what the plants spoke into a human tongue. (48)

In a time of such destruction, our lives depend on this listening. It may be that the earth speaks its symptoms to us. With the nuclear reactor accident in Chernobyl, Russia, it was not the authorities who told us that the accident had taken place. It was the wind. The wind told the story. It carried a tale of splitting, of atomic fission, to other countries and revealed the truth of the situation. The wind is a prophet, a scientist, a talker.

These voices of the world infuse our every act, as much as does our own ancestral DNA. They give us back ourselves, point a direction for salvation. (52-53)

James Baldwin, The Fire Next Time

I always thought I had read The Fire Next Time, but it turns out I had only felt like I had because I’d heard it referenced so many times. Last year, I finally did read the slim book of two essays written in the form of letters. The writing is beautiful and searing and precise. It pains me that it is still timely. I can’t help but wonder, would we even need books like White Fragility in 2020, if more of us had read and received what Baldwin gave us in 1962. These passages are from the second letter of the two in the book, “Down at the Cross: Letter from a Region in My Mind.”:

There appears to be a vast amount of confusion on this point, but I do not know many Negroes who are eager to be “accepted” by white people, still less to be loved by them: they, the blacks, simply don’t wish to be beaten over the head by the whites every instant of our brief passage on this planet. White people in this country will have quite enough to do in learning how to accept and love themselves and each other, and when they have achieved this—which will not be tomorrow and may very well be never—the Negro problem will no longer exist, for it will no longer be needed. (21-22)

What it comes to is that if we, who can scarcely be considered a white nation, persist in thinking of ourselves as one, we condemn ourselves with the truly white nations, to sterility and decay, whereas if we could accept ourselves as we are, we might bring new life to the Western achievements and transform them. The price of this transformation is the unconditional freedom of the Negro: it is not too much to say that he, who has been so long rejected, must now be embraced, and at no matter what psychic or social risk. He is the key figure in his country, and the American future is precisely as bright or as dark as his. And the Negro recognizes this, in a negative way. Hence the question: Do I really want to be integrated into a burning house? (94)

Baldwin comes back to love in this essay, but like Oliver’s hope and Hogan’s listening this isn’t a soft, pastel love. Nor is the self-love he refers to about narcissism, but its opposite. This love is wedded to honesty:

All of us know, whether or not we are able to admit it, that mirrors can only lie, that death by drowning is all that awaits one there. It is for this reason that love is so desperately sought and so cunningly avoided. Love takes off the masks that we fear we cannot live without and know we cannot live within. I use the word ‘love’ here not merely in the personal sense but as a state of being, or a state of grace—not in the infantile American sense of being made happy but in the tough and universal sense of quest and daring and growth. And I submit, then, that the racial tensions that menace Americans today have little to do with real antipathy—on the contrary, indeed—and are involved only symbolically with color. (95)

John O’Donohue, Eternal Echoes: Celtic Reflections on Our Yearning to Belong

My favorite book by John O’Donohue is Anam Cara, and this one, too, is a close companion. There is a warmth to O’Donohue’s language that makes the whole concept of suffering as spiritual growth seem less lonely. The passages below are from the chapter “Suffering as the Dark Valley of Broken Belonging”:

When we learn to see our illness as a companion or friend, it really does change the way the illness is present. The illness changes from a horrible intruder to a companion who has something to teach us. When we see what we have to learn from an illness, then often the illness can gather itself and begin to depart. (174)

It is difficult to be gentle with yourself when you are suffering. Gentleness helps you to stop resisting the pain that is visiting you. When you stop resisting suffering, something else begins to happen. You begin slowly to allow your suffering to follow its own logic. The assumption here is that suffering does not visit you gratuitously. There is in suffering some hidden shadowed light. Destiny has a perspective on us and our pathway that we can never fully glimpse; it alone knows why suffering comes. (157)

Christian Wiman, My Bright Abyss: Meditation of a Modern Believer

Christian Wiman is best known for his poetry, but he wrote this collection of essays while he faced an aggressive form of cancer in his thirties.

From the preface:

When my life broke open seven years ago, I knew very well that I believed in something. Exactly what I believed, however, was considerably less clear. So I set out to answer that question, though I have come to realize that the real question—the real difficulty—is how, not what. How do you answer that burn of being? What might it mean for your life—and for your death—to acknowledge that insistent, persistent ghost?

From his essay, “Tender Interiors”:

No, to die well, even for the religious, is to accept not only our own terror and sadness but the terrible holes we leave in the lives of others; at the same time, to die well, even for the atheist, is to believe that there is some way of dying into life rather than simply away from it, some form of survival that love makes possible. I don’t mean by survival merely persisting in the memory of others. I mean something deeper and more durable. If quantum entanglement is true, if related particles react in similar or opposite ways even when separated by tremendous distances, then it is obvious that the whole world is alive and communicating in ways we do not fully understand. And we are part of that life, part of that communication—even as, maybe even especially as, our atoms begin the long dispersal we call death. (35)

There’s been a lot of talk of elders lately, and often mine come in the form of books. These teachers, too, seem pull from some deep stream of knowing. They listen to wind and darkness and illness and love. They make clear, the thousand unbreakable links between us, even in the dark winter hours.

More Resources

If you have more time for listening to podcasts than reading, Kristin Tippett interviews three of these authors on various episodes of On Being.

Interview with John O’Donohue “The Inner Landscape of Beauty”

Interview with Mary Oliver “Listening to the World.”

Interview with Christian Wiman “How Does One Remember God?”


James Baldwin died before the era of podcasts, but these two recent interviews about race in America have given me grist and hope.

Interview with angel Kyodo williams “The World is Our Field of Practice”

Interview with Claudia Rankin (on Longform)

Claudia Rankine is a poet, essayist, and playwright. She is the author of the new book, Just Us: An American Conversation.

If you would like to subscribe to Tending to Endings, please leave your name and email below. It is a two-part process to subscribe, so please check your junk mail if you do not receive confirmation in your inbox. You can also reach me at laura@laurastavoe.com. Thank you for reading!

Findings

Tending to Endings (eight)

This week I am with my dad and sisters in Hawaii where we are holding a second Celebration of Life for my mom for her Maui friends in a place she considered, as my aunt Carol says, holy ground.

Rather than skip a posting, I figured it was a good opportunity to share a few recent finds by others who are paying attention to endings.

The first two come from a recent issue of Brainpickings, a gorgeous collection of wisdom curated by Maria Popova each week. The link includes both a text and audio version of the poem Cold Solace by Anna Belle Kaufman. [90 sec]

https://www.brainpickings.org/2020/02/03/emily-levine-cold-solace-anna-belle-kaufman/?mc_cid=c72a568675&mc_eid=445b891313

And then below is a Ted Talk by philosopher, writer and comedian Emily Levine that she gave after she was diagnosed with stage IV lung cancer. [16 min]

Frank Ostaseki began the Zen Hospice Project in 1987, the first Zen Buddhist hospice center in America. Inviting the Wisdom of Death into Life [23 min.]

In this episode of On Being, Krista Tippet and poet and editor Christian Wiman discuss a variety of topics related to death including living with a terminal diagnosis. [52 min]

Finally, on the plane over here I listened to an episode of the new podcast Poetry Unbound about a poem by Marie Howe, My Mother’s Body. [8 min]

https://onbeing.org/programs/a-poem-for-what-comes-with-age/

Thank you for reading, and welcome to the many new subscribers this week! If you want to peruse earlier posts, you can get to them here. You may subscribe or leave comments or suggestions below. I can also be reached by email at Laura@laurastavoe.com

I look forward to returning with a regularTending to Endings on February 28.

Have a lovely week,

Laura

photo of Laura

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Waking Slow

I wake to sleep, and take my waking slow –Theodore Roethke

Daytime Moon

Tending to Endings (five)

If you have not filled out an advanced directive yet, you will get no judgement from me. I just completed and signed mine this week, January 27, 2020.  What finally tipped the scales was not the horrible predicament I would put my family in should I suddenly end up in a coma, but rather the thought of my friends running around looking for my advanced directive saying, “I know there has to be one somewhere. Laura was smart about things! She’s writing blog about this stuff!”

I’m not proud of this. But I include it here in case, you, like me, do not always take care of important things.


I have started the form many times.

In fact, the first time I held an Advanced Directive was after I left the emergency room in 1999. The minivan I had been driving was T-boned by a truck carrying a septic tank. My fault. I had stopped at a two-way and gotten confused on which direction to turn. It was a sunny day on a rural road. I remember there as being no other vehicle in sight—only alfalfa fields and clear skies and the Owyhees in the distance—until I pulled into the intersection and my wrongness slammed into me. Metal crunched and clawed; the world spun; my chest hurt. Powder rose like smoke dancing in shafts of light. I did not know if I was dead. Eventually a cop approached tentatively, fear in his eyes. He didn’t know either.

The other driver and I were, somehow, fine. On the way home from the hospital, I stared at the typed form the receptionist had offered, the words “Living Will” centered at the top beside a rose emblem.

If anyone needed a living will (any will) at that time, it was me. I was going through a divorce. I had preschool-aged twins. Had I ended up brain dead on life support that day, it would’ve been left to my parents and soon-to-be ex-husband to muddle their way through on my behalf. I would not have wished that on any of them.


Two decades later, I finally have an advanced directive.

I contemplate why this has taken so long.

  1. Fear: Particularly when my kids were young, death was so unthinkable. Making plans for death somehow felt akin to giving my consent. (Denial is a cunning force.)
  2. Selective Laziness: I have a general dislike for legalities and paperwork. I am much quicker to take on the physical and relational work than the paperwork in pretty much any area of life. (I’ll do yoga and eat well, but procrastinate calling to get health insurance quotes.)
  3. Ambivalence: I don’t know exactly what I want at the end of my life. How could I? I haven’t been there.

It is this third one that has been the last to fall.


At the last Death Café in Boise someone said, The form is quick. I filled it out in fifteen minutes on my lunch hour.

But when I pull up the forms on Honoring Choices Idaho , the very first question gives me pause: What abilities are so important to you that you cannot imagine life without them? It seems to me a trick question. I’ve learned many times that my imagination is not very accurate in predicting whether I can find peace or joy in various circumstances.

I remember what an ICU nurse once shared, The most important thing is to have a health agent who knows you well enough to interpret and follow your wishes.

This helps me move forward.

My problem was the form was asking me to make black and white decisions for a potential future time in which I knew things were likely to be gray. But I could identify people who I trusted to be flexible thinkers and to know how I might perceive various situations.

Sallie Tisdale, writes, in Advice for Future Corpses, “A friend who knows your values and can handle a crisis is ideal.” I am lucky to have a few to choose from. My husband is my primary, and I add two friends. They are alternates, but they are also people who I know could be helpful to John should he have to make difficult choices.

There are a couple of check boxes asking whether I want CPR or a Feeding Tube or a Ventilator in cases where “Your doctors have determined your illness or injury cannot be cured and death is likely, or your brain function will not return.”

This is pretty clear, and I think I know my answer. Still, I am 55, healthy, and quite fond of living. Before answering, I send the language to a friend who is a nurse along with this question: If I check no to CPR, they will still give me CPR if there is a chance I can recover, right?

It takes her about thirty seconds to respond:  Yes, you are absolutely right – the situation only applies if there is no brain function or chance of recovery. The doctors and nurses are very diligent about the certainty of the prognosis.

That gets me through the pick-only-one boxes.


The National Hospice and Palliative Care Organization has templates for advanced directives from each states and a wealth of other resources. And Honoring Choices Idaho offers guides, for the document and also related topics such as dementia and organ donation.

The online resources are extremely helpful, but even more so were the actual conversations I finally had with friends, family, and those with experience in end-of-life care. An advanced directive includes space for comments, nuance, and values. No one could answer these for me, but others could provide context. Our collective experience regarding end-of-life matters is much richer than any one individual’s.

The form took, well, about fifteen minutes. Or twenty years and fifteen minutes depending on how you look at it.

It feels good to print and sign the document. Like any other life decision, this one is made without knowing the future. But I discovered I can influence something that matters a great deal to me if I can lift the burden of those decisions off of my family. Which of course is what people have been saying about end-of-life planning all along. 

I take my waking slow. I learn by going where I have to go.

Full text of Theodore Roethke’s villanelle The Waking can be found here and is well worth the read!

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Books by Mortals

Tending to Endings (three)
Snowy Bitter Brush

Hospice workers often say, “Every death is different.” I would add, every decline, too. One reason I didn’t find much literature directly applicable during the time I was caregiver for my mom is that Alzheimer’s affects people in such individualized ways and it keeps changing. My mom was either in a much earlier or a much later stage than whatever I was reading about at the time.  

Also, I was grappling with the hugeness of what I was going through at the same time I was trying to figure out how to help my mom remember how to sit down in a chair. Books either left the existential crises out or approached it in a way that felt clinical. OK, I may have had unreasonable expectations on what the average book could offer.

But two helped me a great deal, and I have been recommending them ever since.

I first read Atul Gawande’s Being Mortal: Medicine and What Matters in the End in 2016. Gawande, a surgeon, gives historical and cultural context regarding end-of-life treatment, and he draws on research and case studies and personal memoir–all compelling–to arrive at a series of conclusions:

…our most cruel failure in how we treat the sick and the aged is the failure to recognize that they have priorities beyond merely being safe and living longer; that the chance to shape one’s story is essential to sustaining meaning in life; that we have the opportunity to refashion our institutions, our culture, and our conversations in ways that transform the possibilities for the last chapters of everyone’s lives.

Two years later later when it felt like mom’s options were closing in, Gawande’s words helped me envision a broader landscape from which to make choices. For instance, when I explain to friends why my mom’s dying was beautiful and good as well as devastating, I include that we were able to get her Maui, my parents’ second home and her favorite place in the world.

It may seem an obvious decision. Mom, age 79, had two terminal diseases: inoperable cancer and advanced Alzheimer’s. My parents hadn’t spent a winter in Chicago in fifteen years. Why would we hesitate?

And yet, one constant of being a caregiver was that I was hardly ever sure I was doing the right thing.

Was it more important for my parents to be close to a deeper family support system or to get to their island home? Should we stay near Chicago where there were more medical specialists? Was the nine-hour flight too much for my mom to bear? Also, Alzheimer’s made it difficult to know what my mom truly wanted.

What Gawande’s book gave me was not a prescribed course, but rather, a broader framework. It offered language beyond treatment options: What is important? What is meaningful? What are we afraid of? What would make this a good day?

Those simple questions helped me make peace with a thousand imperfect decisions. A few —like getting mom to Hawaii and onto home hospice care—significantly transformed her experience. Mom spent her last four months at home on the lanai watching whales rather than in doctors’ waiting rooms.

I read the second book, Advice for Future Corpses (and Those Who Love Them): A Practical Perspective on Death and Dying in the weeks after my mom’s death. Sallie Tisdale, a palliative care nurse, covers the particulars of dying from the point of view of someone who has been beside many deathbeds. Her tone is warm and open and direct. Somehow found it very comforting to have versions of what I had just been through recounted. It made me feel less alone.

Tisdale does not suggest that having extensive experience with death means that we understand it. One things that helps me trust both of these writers is each approaches the topic of death with a sense of humility. “I have never died,” Tisdale writes, “so this entire book is a fool’s advice.”

Tisdale’s writing is elegant and honest and often funny. I found her section on grief especially relatable.

 No one tells you that grief is like a long march in bad weather. You’re forgetful and find it hard to make decisions and have no interest in the decisions you are being asked to make. You lose track of time, because time changes too, shifting and slowing, speeding and stopping altogether. An hour becomes an elastic, outrageously delicate thing disappearing or stretching beyond comprehension. One is deranged, in the truest sense of the word: everything arranged has come apart.

Ultimately this book helped me consider my own future and that I really do not want my death to usher in complications and decisions and paperwork for those who love me.  Tisdale includes an enlightening chapter about the body after death and also useful templates for death plans advanced directives. 

Early her book Tisdale writes, “We share a grand social agreement about mortality. We choose not to notice, if we can.”  I read both of these books during a time when mortality and all of its messiness was already in my face. I have not always been so ready to read about the end-of-life, and I am well aware that these topics can be anxiety producing.  

But I will say that while the books are very straightforward and direct about death— no euphemisms, no glossing over the hard stuff—one reason I am so quick to recommend them is that ultimately, I also found them empowering and hopeful. As honest as these authors are, each also treats the topic of death with gentleness and love. They write about mortality with a great deal of professional knowledge, but also from the perspective of, well, being mortal.   

Next week I plan to explore the idea of memory books.

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Tending to Endings

Tending to Endings

January 3, 2020

I didn’t know what to expect from a Death Café. I think I imagined costumes, though I knew that wasn’t it. Café seems to suggest something artistic or French. Would everyone be in black? Would people be preoccupied with the afterlife? Would someone try to sell me a funeral plan or a cemetery plot?

I walked into the room in the Healthwise building in Boise to find four circles of chairs in a large carpeted room. No stage make-up in sight. No mortuary brochures. Just people dressed in fleece and flannel, or just-from-work clothes. People dressed like this was December in Idaho. By the start time, most of the chairs were full and the room was humming with conversation. Apparently, a fair number of people in Boise (all different ages) want to spend a Monday evening talking about death. I was one of them.

For most of my life, I have not been a fan of endings. I preferred beginnings—a fresh start, an open road, the sense that anything could happen. I did my best to avoid goodbyes, often distracting myself from them with new adventures.

Recently though, I’ve seen endings in a new light and up close. In 2016 I was present for the death of two friends, and then, last year, I spent much of the last five months of my mother’s life by her side. These experiences were profound and challenging and beautiful and most of all humbling.

In fact, the last time I felt a transformation as big was 25 years ago when I gave birth to my twin sons. Why didn’t someone tell me, I thought. Of course, they had tried. But until I felt that wave of change course through my own body and my own heart, I had no idea of its power. I spent the next five years writing about birth and motherhood and little else.

In the U.S., something even more true about death than birth is that we rarely talk about it until it is upon us. Sometimes, not even then.

There are reasons: fear of the unknown, the worship of all things youthful, a belief that dependency is somehow shameful. To mention end-of-life can feel like naming a failure, taboo in a culture that considers anything possible with enough sweat, intention, and networking.

However, I have come to believe this tendency to ignore endings has a high price.

Particularly with my mom’s death, I learned that there were things we could do to make moments better, more livable, sometimes even more meaningful. My father and sisters and I seemed to stumble upon these things in the nick of time, rather than having resources at the ready. We were my mom’s caregivers and emotional support and spiritual guides and yet, we had no prior training.

Like birth, death up close is very different than I imagined. It is less scary and more mysterious. It is bigger and more painful and more intimate and more beautiful. It is more interesting.

I am not alone in recognizing that we may want to rethink our approach to endings. Surgeons are writing books on mortality, hospice has become mainstream, and dozens of people in Boise, Idaho show up at a Death Café on a Monday evening in December. Many are looking for ways to make this final stage of life less frightening, less lonely, more integrated with the rest of life.

I am not sure of my own role in this arena, but I’ve been preoccupied lately with figuring that out. I have read books, subscribed to podcasts, applied to become a hospice volunteer, attended death cafés, considered new coursework and new careers. Most of all, I’ve been doing what I do with things that attract and confound me. I write.

Ultimately, death is not poetry, or philosophy, or theory. It is experience. And like all of the other experiences in our lives, our choices often lie, not in what happens to us, but in how we prepare, perceive, and respond to them. Do we shut down or do we stay open? Do we draw close to community or do we isolate? I suppose my current obsession is because I believe that if we keep our hearts and minds open even to death, we will gain something unexpected, something true.

And so, with this new year and a new decade begins my new blog about endings. This is not a column that that will argue for a particular approach to caregiving or dying, but rather, a place to explore resources and ideas and, most of all, to find support. One of the biggest things I learned as one of my mom’s caregivers is that the specifics of any chronic debilitating illness do not lend themselves to simple answers. Even opinions I thought I was firm on regarding end-of-life care often seemed irrelevant in the complicated landscape of Alzheimer’s and cancer that pervaded the end of my mom’s life. What I believe people need most—caregivers and loved ones as well as those near death—is a supportive, kind community as we navigate the challenging, sometimes unbearable, terrain.

If you are interested in joining me on this gentle expedition—I hope you will subscribe to my blog below. (I won’t share your email address with anyone.) Next Friday I will write more about my experience at death cafés in Boise, which I found helpful and engaging. And in future weeks, I will find other people and places and resources in Boise and beyond. If you subscribe, I will be able to send the post directly to your email. You can also find each week’s post at laurastavoe.com, where you can contribute to the conversation and peruse other resources.

Thank you for reading. I wish for you a new year full of beauty and light.